Name: Elias Matthew Clarke
Birthday: July 28th, 2010
Time: 11:11am
Weight: 9 lbs. 1 oz.
Length: 19 and 1/2 inches
Hospital: Crouse Irving Memorial, Syracuse, NY
Babies make love stronger, days shorter, nights longer, bankroll smaller, home happier, clothes shabbier, the past forgotten, and the future worth living for.

Friday, May 13, 2011

Elias Update

For those of you (if anyone) checking in from time to time, I thought I would update you as to the status of our not-so-little guy.

Elias is 9 months old already! He is about 29 inches long and weighs nearly 24 pounds! What a big guy. He is a very fast crawler and is even cruising around furniture. He has let go and stood unassisted for a few seconds at a time even. I think he'll be walking within the next month or so. As you can probably guess from his weight, he LOVES to eat. I am still breastfeeding and pumping, but he is on regular table food and will eat just about anything. And everything. He can drink out of a cup, and we will be getting rid of the bottle as soon as I am finished with the school year. He is a content baby. He loves his big sister and brothers. He has such a kind and patient spirit. I can't imagine my life without him.

As for his BWS, it is so mild most people don't notice any difference. I see no difference in his limbs, only a slight discrepancy in his face. He has received a clean bill of health from the surgeon and at all of his regular physicals. He has consistently been in the 97th percentile for weight, and is about at the 50th for height. In December, he was seen by a genetic specialist and was given a clinical diagnosis of BWS. However, the doctor said it was an extemely mild case. And since he was treated for his hypoglycemia at birth, he has been on-time if not ahead for all of his milestones. He will need a lift in his shoe as he grows because his left side is longer than his right by just over a centimeter. The lift is only to ensure that he does not develop scoleosis as he grows. He will probably be fitted for that this summer, when he returns to the geneticist for his one-year check-up. He will also see the surgeon again at a year, but his belly star is perfect. It's slowly moving toward being an innie, even. Just amazing.

1 comment:

  1. Your children are adorable! I found out at a month ago that my husband and I are expecting an o-baby. I'm seeking information and support from other families that have been through this experience. Thank you for sharing your story!